Support Caseworker - Referral Service

Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. We work so that everyone can access the healthcare, support and treatments they need to feel good, mentally and physically. This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10-year strategy to transform the lives of people living with muscle wasting conditions. Our vision is a world without limits, and we won’t stop until we achieve it.

Our care, information and advocacy service coordinates our support for families, providing advice and practical support to enable individuals to access the services, benefits and equipment they are entitled to. As part of our support, we also connect individuals with others affected by these rare conditions through our peer support networks.

The Support Caseworker will provide timely, person-centred support to individuals and families referred into Muscular Dystrophy UK services. The post holder will use structured holistic conversations to understand needs, agree appropriate support, and help people access information, practical guidance, peer support and other internal or external services.

This role ensures individuals feel informed, supported, and confident to access the help they need at the right time, while contributing to consistent delivery of referral and support pathways across services. The role does not provide clinical advice, but works alongside healthcare and other professionals where appropriate, with consent and in line with safeguarding and data protection requirements.