Motor Neuron Disease Coordinator

In this role, your key responsibilities will include Hold a clinical caseload of MND patients, working with Lead MND Coordinator and the wider regional team to provide supportive care. Act as single point of contact for patients with MND and their families within the activities of the Care Centre Undertake the established post diagnostic support visit to patients recently diagnosed with MND, offering post diagnostic advice, emotional support, clinical advice relating to NICE guidance and actioning referrals to the wider MDT for ongoing support. Attend and offer MND coordination support within the specialist regional MND clinic structure. Attend and participate in MND coordinator led MDTs across the region. Participate in the MND service objectives and clinical improvement plan, meeting the conditions of the MND Association grant, participating in management review meetings, , participating in the regular NICE audit and taking responsibility for delivery for defined service objectives. Represent the MND Coordination Team at relevant meetings. Provide MND specific training to colleagues at UHS and the wider regional team, offer advice and support regarding MND care as required. Collaborate within the service to support the MND research pathway and Senior MND Research Nurse.